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Gift Planning

Children's Mercy Makes a World of Difference

Vladimir CrouchVladimir Crouch was just a baby when his mother Elena noticed that her son was suffering from what seemed like a severe rash that caused his skin to crack and peel. While living in Wichita, Kan., she consulted several physicians, and then brought Vladimir to the Hematology/Oncology Department at Children's Mercy for low hemoglobin.

After running a battery of tests, a team consisting of a hematologist, geneticist, bone marrow transplant (BMT) physician and allergist/immunologist diagnosed Vladimir with Ommen's Syndrome, a rare autosomal recessive condition.

"Ommen's Syndrome is a very rare disorder. As an oncologist, you don't see cases often," explained Jignesh Dalal, M.D., assistant professor of Pediatrics, University of Missouri-Kansas City School of Medicine. How rare is rare? In a 2001 worldwide clinical summary of outcomes of 41 patients with Ommen's Syndrome, 17 survived while the remaining 24 passed away. In his tenure at Children's Mercy, Dr. Dalal has seen only three cases: one involved a child that had the only available treatment but had not survived, another child that sought treatment at a different facility, and Vladimir's case.

"Ommen's Syndrome is tricky to diagnose because there are nonspecific symptoms including the skin turning red, and the spleen and lymph nodes becoming enlarged," said Dr. Dalal. "Several disorders exhibit similar symptoms, so it's difficult to diagnose right off the bat. In Vladimir's case, we ran several tests and realized that he had Ommen's Syndrome." The other difficult piece regarding the disorder is that there is only one existing treatment, Bone Marrow Transplant (BMT). Without it, the disease is fatal.

In Vladimir's case, it was critical to boost his weak immune system so that he could successfully handle the treatment, so Dr. Dalal started with a heavy regimen of medications that would fight the infection, while looking for an appropriate BMT match. "Up to that point, Vladimir had been treading water; however, he needed to be physically strong enough for the BMT therapy. I have to say he is just one kid you cannot discount because he stabilized, we found a donor match and the BMT took. It's almost two years later and while he comes in for regular checkups, Vladimir is doing great."

Elena said, "We are very grateful to Children's Mercy and his donor for saving my son's life. We want to get the word out to everyone throughout the world the difference Children's Mercy and all donors have made in our lives."

You Can Make a Difference
Through your generosity, Children's Mercy will continue to be recognized as one of the leading children's hospitals in the nation. Explore the ways you can make a difference in the life of a child like Vladimir.

eBrochure Request Form

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A charitable bequest is one or two sentences in your will or living trust that leave to Children's Mercy a specific item, an amount of money, a gift contingent upon certain events or a percentage of your estate.

an individual or organization designated to receive benefits or funds under a will or other contract, such as an insurance policy, trust or retirement plan

"I give to Children's Mercy, a nonprofit corporation currently located at Kansas City, MO, or its successor thereto, ______________* [written amount or percentage of the estate or description of property] for its unrestricted use and purpose."

able to be changed or cancelled

A revocable living trust is set up during your lifetime and can be revoked at any time before death. They allow assets held in the trust to pass directly to beneficiaries without probate court proceedings and can also reduce federal estate taxes.

cannot be changed or cancelled

tax on gifts generally paid by the person making the gift rather than the recipient

the original value of an asset, such as stock, before its appreciation or depreciation

the growth in value of an asset like stock or real estate since the original purchase

the price a willing buyer and willing seller can agree on

The person receiving the gift annuity payments.

the part of an estate left after debts, taxes and specific bequests have been paid

a written and properly witnessed legal change to a will

the person named in a will to manage the estate, collect the property, pay any debt, and distribute property according to the will

A donor advised fund is an account that you set up but which is managed by a nonprofit organization. You contribute to the account, which grows tax-free. You can recommend how much (and how often) you want to distribute money from that fund to Children's Mercy or other charities. You cannot direct the gifts.

An endowed gift can create a new endowment or add to an existing endowment. The principal of the endowment is invested and a portion of the principal’s earnings are used each year to support our mission.

Tax on the growth in value of an asset—such as real estate or stock—since its original purchase.

Securities, real estate or any other property having a fair market value greater than its original purchase price.

Real estate can be a personal residence, vacation home, timeshare property, farm, commercial property or undeveloped land.

A charitable remainder trust provides you or other named individuals income each year for life or a period not exceeding 20 years from assets you give to the trust you create.

You give assets to a trust that pays our organization set payments for a number of years, which you choose. The longer the length of time, the better the potential tax savings to you. When the term is up, the remaining trust assets go to you, your family or other beneficiaries you select. This is an excellent way to transfer property to family members at a minimal cost.

You fund this type of trust with cash or appreciated assets—and may qualify for a federal income tax charitable deduction when you itemize. You can also make additional gifts; each one also qualifies for a tax deduction. The trust pays you, each year, a variable amount based on a fixed percentage of the fair market value of the trust assets. When the trust terminates, the remaining principal goes to Children's Mercy as a lump sum.

You fund this trust with cash or appreciated assets—and may qualify for a federal income tax charitable deduction when you itemize. Each year the trust pays you or another named individual the same dollar amount you choose at the start. When the trust terminates, the remaining principal goes to Children's Mercy as a lump sum.

A beneficiary designation clearly identifies how specific assets will be distributed after your death.

A charitable gift annuity involves a simple contract between you and Children's Mercy where you agree to make a gift to Children's Mercy and we, in return, agree to pay you (and someone else, if you choose) a fixed amount each year for the rest of your life.

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